DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneSMAvoice.com | ||
If you'd like to unsubscribe and stop receiving these emails click here |
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Madison’s SMA Story
Madison was born both happy and healthy. For six months, everything was perfect. And then I noticed she wasn’t using her baby walker or bouncing in her bouncy seat anymore. She had stopped bearing weight on my lap when I stood her up—nor was she able to hold a crawling position. I brought Madison to the pediatrician, who told me she was just delayed, maybe even a little lazy.
This didn’t sit well with me, or ease my mind in any way, shape, or form. I hadn’t acquired years of experience as a mother of three for nothing! Not to mention, I had been a single mom for five years! A month later, I went back to that practice and asked to see a different pediatrician. She considered my concerns and guessed Madison’s leg might have been dislocated.
Related Content
-
Videos & VisualsGene Therapy for SMA Type 1: Evelyn’s Storyhttps://www.youtube.com/watch?v=yRrqbvUv...
-
EducationIntegrating Newborn Screening for Spinal Muscular Atrophy Into Health Care Systems: An Australian Pilot ProgrammeAim: This study dynamically designed, ev...
-
EducationImprovement in Fine Manual Dexterity in Children With Spinal Muscular Atrophy Type 2 After Nusinersen Injection: A C...Although nusinersen has been demonstrate...
-
EducationNusinersen for Spinal Muscular Atrophy in the United States: Findings From a Retrospective Claims Database AnalysisSpinal muscular atrophy (SMA) is a rare,...
-
People & PlacesMuscular Dystrophy AssociationMDA's legacy of progress has always star...
-
EducationScreening of Neonatal UK Dried Blood Spots Using a Duplex SMN1 Screening AssaySpinal muscular atrophy (SMA) is an auto...
-
EducationNatural History of Spinal Muscular Atrophy in Children: An Analysis of 117 CasesObjectives: To study the natural history...
send a message
Reset password
password changed successfully!
please log in with your email address and new password.
your activation key expired
this confirmation key has expired. please try to log in again or resend confirmation email.
confirmation email sent
a confirmation email has been sent to your inbox. click the link in the email to activate your account.
can't find the email? be sure to check your spam folder.
password reset email sent
an email has been sent to you with a link to reset your password.
can't find the email? be sure to check your spam folder.
If you are a doctor or other qualified health care professional, you should not offer any medical advice or treatment on our Sites, nor should you allow the content of our Sites to substitute for your own medical judgment. Please thoroughly review the information provided on our Sites before deciding whether any of the products, services, or treatments therein are right for you or others.
your account is now activated!
Log in
This feature is only available to members.
you haven't confirmed your email address yet. resend confirmation email